We’re calling on one million people to lead the way toward better health.
What is precision medicine?
Precision medicine is health care that is based on you as an individual. It takes into account factors like where you live, what you do, and your family health history. The goal is to be able to tell people the best ways to stay healthy. If someone does get sick, precision medicine may help health care teams find the treatment that will work best.
What is the All of Us Research Program?
The All of Us Research Program is a large research program. The goal is to help researchers understand more about why people get sick or stay healthy. People who join will give us information about their health, habits, and what it’s like where they live. By looking for patterns, researchers may learn more about what affects people’s health.
How do I join All of Us?
The All of Us Research Program is now in beta testing. Once the program is fully launched, there will be
three ways to join:
• Visit the All of Us website joinallofus.org.
• Download the All of Us app.
• If you get health care at one of our affiliated health care provider organizations, you can join there.
Because All of Us is research, you will be asked to complete an informed consent process. This process tells more about what is involved, and the risks and benefits of joining.
What will you ask me to do?
If you decide to join All of Us, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live, questions about your health, family, home, and work. If you have an electronic health record, we will ask for access. We might also ask you to give samples, like blood or urine.
How long will All of Us last?
All of Us may last for at least 10 years. We hope you will stay involved over time. If you join, you can withdraw (“quit”) at any time for any reason without penalty.
Why should I join All of Us?
You will be contributing to research that may improve health for everyone. Here are some examples of what researchers might be able to discover:
• Better tests to see if people are sick or are at risk of getting sick.
• Better mobile apps to encourage healthy habits.
• Better medicine or information about how much of a medicine is right for each person.
What will you do to protect my privacy?
We will take great care to protect your information. Here are a few of the steps we will take:
• Information we have about you will be stored on protected computers. We will limit and keep track of who sees the information.
• We will remove your name and other direct identifiers (like your date of birth) from your information and replace them with a code.
• Researchers must promise not to try to find out who you are.
• We will tell you if there is a data breach.
• The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.
Please visit joinallofus.org for more information.
To view this as a pdf, click HERE.